It is important to recognize that while there can be very intense phases with dysautonomia conditions (medically and emotionally), once treatment starts patients usually begin taking steps forward in their recovery process.
We invite you to explore a very small sampling of stories from a few of the extraordinary young people DYNA has served over the years. When reading their stories, please be aware that they were written at various times in their illness/recovery process. Most of these amazing young people have since fully recovered or significantly improved.
It is essential that patients always look toward the future and try to maintain a positive attitude. Coping successfully requires a balanced mixture of practical skills and mental attitudes. Advice about maintaining a positive attitude may seem infuriating when you’re in pain or exhausted. However, there are certain attitudes that have been associated with patients who live successfully with and/or recover from childhood dysautonomia conditions:
Individual stories from this site are not to be reproduced without explicit consent from DYNA, Inc.
Story title | Author | Age | Location |
---|---|---|---|
Amanda's Race to Recovery | Amanda | Connecticut | |
Ashli's Story | Ashli | 17 | Oregon |
Becky's Story | Becky | 12 | Pennsylvania |
Danna's Story of Hope | Danna | 16 | Iowa |
Emily's Story | Emily | 17 | Canada |
Erin's Story | Erin | 27 | Scotland, United Kingdom |
Jennifer's Story | Jennifer P | 20 | Virginia |
Joanne's Story | Joanne | 21 | Singapore |
My Story | Juli | 17 | Ohio |
Kate's Story | Kate | 23 | Illinois |
Katie's Story | Katie | 22 | Virginia |
Dysautonomia | Kellie B. | Kentucky | |
Learning to See | Laura Engebretsen | 14 | California |
POTS and Wellness | Linda (Simone's Mom) | South Dakota | |
Mandy's Story | Mandy | 11 | Maryland |
Melissa's Story | Melissa | 16 | Indiana |
The Race | Sarah | 13 | Virginia |
Bedtime Reading | Shana | 22 | California |
Glass Pain | Sophie | 18 | New Zealand |
Sophie's Story | Sophie | 18 | New Zealand |