About online resources
Living with a health condition such as dysautonomia can be quite stressful and often presents many life challenges. Thus, patients and family members sometimes go to great extremes to find online resources (without regard to their quality or professionalism). Patients and family members sometimes dwell in online social communities (without regard to the professionalism of the community’s management or to the mind-set created by the community). Uncertified web sites, forums, and information can be quite risky business for dysautonomia patients to delve into. We recommend sticking to certified, professionally endorsed sites and resources and maintaining balance in all aspects of your life (including the amount of time spent online).
DYNA materials
The below resources have been produced for our newly diagnosed patient population specifically by DYNA.
- How to Take Accurate Blood Pressure Readings -- a basic guide about taking accurate blood pressure
- Procedure for Taking Standing Blood Pressure For Postural Orthostatic Tachycardia Syndrome -- a simple guide for your pediatrician or GP on how to properly take standing blood pressure. (Be sure to read about how to take an accurate reading, listed above.)
